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Welcome. We Are a Patient-To-Patient Support Community for People Living with Epidermolysis Bullosa

Our mission at livingwithepidermolysisbullosa.org is to ensure that patients living with Epidermolysis Bullosas, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. Ben’s Friends is a network of safe and supportive patient communities for anyone affected by a rare disease or chronic condition. Recognized …

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Welcome to Living With Epidermolysis Bullosa

What is livingwithepidermolysisbullosa.org? livingwithepidermolysisbullosa.org is a dedicated patient-to-patient support community for patients and families affected by Epidermolysis. livingwithepidermolysisbullosa.org is powered by http://www.bensfriends.org, a group of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Epidermolysis. Who can join Epidermolysis? If you or your family has been affected …

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Topical Treatment Options for Epidermolysis Bullosa Simplex Patients

Approximately one out of every 30,000-50,000 people is affected by epidermolysis bullosa simplex (EBS),1 the most common form of epidermolysis bullosa (EB). Patients with this rare skin disorder have a genetic defect that compromises the structural integrity of their skin, making it particularly fragile and prone to easy blistering. EBS can cause debilitating pain and …

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