Welcome to Living With Epidermolysis Bullosa online Support group for patients, friends and families effect by Epidermolysis Bullosa.

Share your symptoms Anything you have found that helps.

Open discussion about issues common to all with Epidermolysis Bullosa whether primary disease or secondary to another.

Feeling down? Need to rant? This is the place!

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

Anyone whose life has been touched by a rare disease is welcome in a Ben’s Friends community. Most of our members are patients, but we have spouses and parents, besties and caregivers here as well.