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Ben's FriendsOur mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
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WelcomeWelcome to Living With Epidermolysis Bullosa online Support group for patients, friends and families effect by Epidermolysis Bullosa.
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Epidermolysis Bullosa 101Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
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New member IntroductionsNew members, start your experience here. Introduce yourself and share your story. Let us welcome you.
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Symptoms & TreatmentShare your symptoms Anything you have found that helps.
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General Epidermolysis Bullosa DiscussionOpen discussion about issues common to all with Epidermolysis Bullosa whether primary disease or secondary to another.
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Emotional SupportFeeling down? Need to rant? This is the place!
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Complimentary TherapiesThis is the place to discuss all the healing modalities that help you cope with Epidermolysis and help you nourish your mind, body, and spirit. Please remember to discuss any new therapies you are considering trying with your physician.
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Want to recommend a doctor, therapist, or clinic?Want to recommend a doctor, therapist, or clinic? Positive review only, please.
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Bens Friends Apps for mobile DevicesBens Friends Apps for mobile Devices
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NewsNews from Bens Friends
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Site FeedbackDiscussion about this site, its organization, how it works, and how we can improve it.
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